NF can affect anyone regardless of
ethnicity or gender, and roughly half of all
cases arise in families with no history of
the condition.
The types of NF include neurofibromatosis type 1 (NF1), and all types of schwannomatosis (SWN), including NF2-related schwannomatosis (NF2).
Awareness of NF, along with a lack of understanding of the signs and symptoms, even amongst healthcare professionals, is far too common and has the potential to be life-threatening.
Delays in diagnosis mean that critical health checks and monitoring of new or existing tumours is not happening or not happening regularly enough. This can have a significant long-term impact on a person’s health and wellbeing.