About the CHildren's Tumour Foundation

The Children’s Tumour Foundation walks with everyone living with Neurofibromatosis (NF) on their journey and is there to support them every step of the way.

MOVING TOWARDS A FUTURE FREE FROM TUMOURS

The Children’s Tumour Foundation (CTF) is Australia’s only patient advocacy and support organisation for neurofibromatosis (NF); a genetic condition that causes tumours to form on nerves, under the skin and deep in the body.

We empower kids, adults and their families with the knowledge, connections and support needed at every stage of their journey, working to improve life outcomes in three ways:

SUPPORT

Addressing immediate needs

Beyond the need to treat the physical symptoms of NF, living with NF can also take an emotional toll on both the patients and their families. To combat the feelings of isolation and anxiety, we create opportunities for people to come together in safe, supportive spaces, connecting them with balanced information, treatment options and each other. We fill the gap that clinical care is unable to meet.

ADVOCACY

Leading change for a better tomorrow

Living with a lifelong, chronic and progressive health condition is complex. As the leading, national organisation working alongside Australians impacted by NF, we advocate for improved access to healthcare, education supports and economic position. Our goal is to make life more equitable for those living with this rare condition.

RESEARCH

Giving hope for a future free from tumours

We are one of Australia’s leading charitable contributors to NF research with millions of dollars invested into key projects through on-going advocacy efforts and direct funding. We are also about to rollout new "accelerator grants" to support the development of the next generation of NF researchers in Australia.

AT NO COST TO THE PERSON LIVING WITH NF, WE PROVIDE:

Free national helpline
Educational resources, teacher toolkits, new diagnosis health kits and online webinars
Support navigating NDIS
Access to online support groups and carer support programs
Community events, such as camps with opportunity to connect with others.
Access to two paediatric clinical nurse specialists in major hospitals to coordinate care for patients

Help us Conquer NF in Colour this NOVEMBER

This is why Conquer NF in Colour is so important. Not only does the event raise awareness of this devastating condition, it also raises vital funds to enable much-needed support to patients and their families, as well as essential research into the prevention, diagnosis, treatment and eventually, a cure.

Conquer NF in Colour is owned and operated by the Children’s Tumour Foundation.

Visit ctf.org.au for more information about NF.

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