“When Jack was diagnosed with NF, our world changed immediately.”
Jack was born with a bowed leg, the result of a condition called, Tibial Dysplasia - a rare symptom of neurofibromatosis type 1 (NF1), occurring in around 1 in 150,000 births.
As soon as Jack was old enough to stand and begin to walk, he required an AFO (Ankle Foot Orthotic) to support his leg bone. As he grew, he watched his peers run, jump and climb and he wished he could keep up.
By the time Jack was four, he had already undergone three surgeries on his leg to correct bone bowing, which had reached 85-degrees at the time of his first major surgery.
Now six, Jack has had more MRIs, needles, surgeries and specialist appointments than any person should have in their lifetime.